nurse or doctor with baby
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Complex Medical Workgroup

Bringing families, providers, and professionals together to improve navigation and coordination across the care ecosystem for children with complex medical needs (ages 0-26). 

Our Focus

Goal: All children with complex medical needs (ages 0-26) and their families in San Francisco can access and coordinate the care they need to ensure well-being for their family and full inclusion in community life.

Children with complex medical needs — and their families — deserve a care system that works with them, not one they have to hold together on their own. Too often, families become the connective tissue between disconnected organizations, each running its own process and system with no shared thread between them. Families don’t know what services exist or how to access them, and even providers frequently don’t know what’s available outside their own organization.

The Complex Medical workgroup brings together families, providers and professionals across the care ecosystem to focus on improving navigation and coordination, so families of children with disabilities and complex medical needs can spend less time as the hub of a fractured system, and more time focused on their child’s well-being.

What Families Told Us

Real experiences from families navigating complex medical services in San Francisco.

Complex Medical Needs Focus Group Visual Note 11.17.23
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What we've created

Complex Medical Resources Screengrab of Pamphlet

Complex Medical Needs Resource List

A curated resource guide connecting families to the first calls to make, from medical insurance and care coordination to school district and mental health support, all in one place.

What else our partners are working on:

All In Progress!

Case Management Landscape Analysis

Lead Partner: Support for Families
Completing a landscape analysis of all types of case management offered for families of children with disabilities in San Francisco, to serve as the foundation for new tools.

FindHelp for San Francisco

Lead Partner: Family Services Alliance (FSA)
Developing the FindHelp directory in San Francisco so families, healthcare providers, schools, and community partners can easily discover and refer to services.

ECM Linkage Between CCS and SFHP

Lead Partner: CCS / SFHP
Identifying shared families with high-risk indicators to refer to Enhanced Care Management under the CalAIM data sharing agreement.

GGRC Community Trainings / Education

Lead Partner: GGRC
Providing trainings in the community on what GGRC can offer.

Community Outreach

Lead Partner: Community Connectors
Community outreach, led by SF Kids Families, to connect medically complex families to resources and share community needs with providers.